Off to the Beach!

Not that breezy and fun beach, and not that I like beach much.

Today’s the day I am meeting this neurologist+researcher at Pantai Hospital KL.

Yeah, that ‘beach’. Literally.

Brought all my past scans, and test results.

She showed her powerpoint slides with details of similar illness, and past patients.

It’s like some business presentation.

So, this Dr Shanthi actually based in HKL but has a clinic here at Pantai on every Saturday. She flipped through all my test results, peeked at my past MRI scans.

Her summary – the symptoms I am having are considered mild but it may progress rapidly. The nerve inflammation may spread up to the brain. She suggested to redo all the tests.

The treatment? Steroid! For LIFE!

It won’t completely cure it but steroid will control it so that it won’t get worse.

Happy Birthday

We have not met.

But somehow we get along like we have known each other for ages.

Weeks ago, I came across a kinda cute birthday card. It has an owl on the front. People say owl brings luck and happiness. Bought it but not sure why I bought it even when I know it cannot be given to you physically.

Anyway, there are a lot that I wanted to write in that card but space is limited. 

Here I wish this special friend a happy birthday.

I wish there will be soon a day you will find joy and happiness, and everyday fill with loads of wonderful things in life.

And, thank you for being there to listen to my craps.

Solitary.. Not So..

Drove to Morib by myself today.

Sat down by the beach.

Cleared my head a bit.

Read a bit.

While waiting for the sun to set.

Watched parents playing with their kids in the water.

Watched couples strolling by the beach.

Guess I was the only odd one there.

Sun has set.

Stayed for another bit until the sky got dark.

Took a longer route home.

It was close to 10 by the time I reached home.

Still not feeling very good though.

Good night.

The Results

Wished it is a good ones.

Too bad, things doesn’t always go along with your plan.

Blood works not showing anything off.

MRI though..

The enhancement (inflammation) on the spinal cord is still there. Dr Guna couldn’t tell if it has always been there since the last MRI back in Sep 2016, or it healed and came back again.

She suggested to refer me to another neurologist at HKL. She does research on these cases. I said okay. Not that I have other choices available. She said she will call her to explain my case and make an appointment with her for me. Will get back to me on Monday.

Broke down while on my way back to the car.

I am so scare that I have to go through the whole ordeal again.

What if?

Test Day

Lots of tests…

I had brain and full spine MRI. Had few vials of blood taken for full blood screening.

Took a short nap while inside the MRI machine. It took about 3 hours to get all done. Had to stop for a while. Guess I was too nervous.

Got all done almost in late afternoon.

Was super hungry.

Got myself Prosperity Burger 😋

Hello Again, PMC!

When was the last time I was here? Can’t remember but it should be my last follow up with Dr Guna.

She is surprised to see me. Told her my symptoms. She suggested to have a full spine, and brain MRI. Ordered full blood test. All to be done tomorrow.

She said the chance of relapse is very low and rare. If it does come back, it’s not GBS but something else.

Ooooooookay…

Let’s see what tests tell us.

Is it coming back?

So… what happened?

The same tingly numbness on the same leg. Exactly like how it was 3 years ago (or 2 years plus). I don’t want to think that it has come back, and planning just to get to a normal GP for some medications and sleep it off.

I was forced to take the rest of the day off, and to call Dr Guna for an appointment for tomorrow.

So, I went up to my desk, and started packing.

Went to my usual GP to get a referral letter for tomorrow’s appointment with Dr Guna.

Reached home and told Mom. She wasn’t too happy, especially with what happening to Grandma. She has been diagnosed with liver cancer.

She nagged a bit, and I got a little pissed. In a slightly high tone, I told her that it’s not that I wanted it to come back, and went back to my room. Stayed for the rest of the night. Didn’t really talk to anyone.